been away a minute. wanted to throw this out there since i see it constantly: someone gets worse on their DMT and immediately thinks it’s not working. i fell for this with Kesimpta. six weeks in, i was convinced it was wrong.
fatigue crushing, foot drop worse, heat just demolished me. i was ready to call my neuro about switching. but i’d actually been tracking the pattern, and when i pulled it all together: symptoms got worse on hot days, better after real sleep, way worse after long delivery shifts. MRI showed no new lesions.
EDSS stable. the drug wasn’t failing. i was confusing disease progression with side effects, plus Uhthoff phenomenon is real. and yeah, working a physical job while managing MS hits different.
sometimes worse doesn’t equal the drug not working. sometimes it’s just living with this disease. anyone else almost switched, then the data told a different story?