Why does my neurologist appointment cost three days

i know pacing. i taught it for years. but the thing nobody talks about: you can’t pace when the infrastructure has zero accommodation for what your body needs. tuesday i went to my neurologist appointment. twenty minutes away. idk, the parking ramp has three flights and no elevator. waiting room has eight chairs (all metal). office is third floor again. by the time i sat down, i was already at the edge of my window. already spending my credit before the appointment even started. here’s the part that kills me: i can see it happening. POTS flaring, legs shaking, brain starting to fog. i know the pattern. but there’s nothing to do. no place to sit down for five minutes between the stairs. no rest built into the system. nowhere to lie down while waiting. people say “just pace.” they mean it well. but pacing assumes you control your environment. you don’t. you get stairs where there should be elevators, standing in lines, the constant assumption that you can just keep going. my crash isn’t always from pushing. it’s from a world that wasn’t designed for bodies that need recovery time baked into every errand. does anyone else spend half their energy just getting to the places that are supposed to help?