Living with EDS and POTS has been a constant game of trial and error, but I’ve found a few things that really make a difference for me. Staying hydrated is a must—I’ve started adding electrolyte packets to my water, and they’ve been a lifesaver for those dizzy, low-energy moments. Gentle exercise like swimming and yoga has also been huge for me. It’s helped strengthen my muscles without putting too much stress on my joints, which can be such a delicate balance.
I’ve also been experimenting with pacing myself throughout the day—taking breaks before I hit a wall instead of after. It’s not always easy to slow down, but it really helps with the fatigue and flare-ups. Compression garments have been another surprising win, especially on days when my POTS symptoms are flaring. It’s all about finding those small changes that add up to something big, and honestly, it’s been a process of learning to work with my body instead of fighting against it.