ngl it’s so frustrating when doc reads all my labs and says everything is ‘perfectly normal.’ then i go home and the next day i’m dealing with massive urticaria flares or some awful dermographism… like, does having a high enough histamine count in my blood really mean anything if i know my mast cells are still doing stuff constantly?
i log flare days and they always hit when I feel things changing internally, not something obvious that can be measured in a blood draw… has anyone had to track actual clinical findings - like specific local inflammation patterns or GI symptoms - because the systemic testing kept coming back clear?
i feel like we’re supposed to spot the window of what keeps going wrong
imo.