been away a bit. i’ve noticed people often think ms is just about the lesions on your mri, but it’s so much more than that. for me, the fatigue and cognitive fog are way worse than the physical symptoms.
i’ve had days where i couldn’t get out of bed, not because of pain or weakness, but because my brain just felt mushy. and the fatigue sleep doesn’t fix, it’s like my body is constantly drained. i’ve been tracking my symptoms and i think there’s a pattern, but it’s hard to explain.
has anyone else experienced this? it feels like there’s more to ms than just the lesions, and i wish more docs would focus on the whole picture, not just the mri results.
what you said about ‘my brain just felt mushy’ really rings true. it’s the cognitive stuff and that fatigue sleep doesn’t fix that really make ms what it is for me, not just the lesion count on an m
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how do you even start to describe the “brain just felt mushy” part to a doc? that’s the invisible stuff that always gets overlooked.
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sleep-proof fatigue, i know it
fatigue is this weird constant for me too, and “my brain just felt mushy” is a perfect description. I’ve been tracking my symptoms and I noticed that on days when I have a lot of cognitive tasks at the library, my fatigue spikes to around 8/10. The medication tracker I use helps me see how my DMT is affecting my energy levels, and it’s been interesting to cross-correlate that with my daily activities.
sleep doesn’t fix fatigue, same