MS fatigue isn't just tiredness

been away for a bit. so i’ve been thinking about this a lot lately. people always say ms fatigue is like being tired all the time, but that’s not it. it’s not just about being sleepy or needing a nap.

it’s a whole different level of exhaustion that doesn’t get fixed with sleep. i’ve been on ocrevus for almost 2 years and the fatigue has gotten worse. i’m talking exhaustion after just a few tasks, like showering or cooking. it’s not just physical, either - it’s mental too.

i find myself struggling to focus or make decisions. anyone else experience this? it feels like my brain and body are just running on empty all the time.

that ‘whole different level of exhaustion’ you’re describing is what gets dismissed as just ‘tiredness’ on paper, but it’s totally different.

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