i’ve been dealing with lupus for 14 yrs now and insomnia is a constant companion. it’s not just the fatigue, it’s the waking up in the middle of the night and not being able to fall back asleep. i’ve tried everything from melatonin to sleep meds, but nothing seems to work long term.
anyone else have this issue? fwiw, i’ve noticed that my insomnia gets worse during flares. has anyone found any correlation between lupus activity and sleep patterns?
i’m still learning to pace myself and manage my symptoms, but sleep is a major issue for me.