Hey everyone! Living with idiopathic pulmonary fibrosis (IPF) has been a wild ride, and going through a lung transplant was no joke. I’ve learned that post-transplant life is all about staying on top of meds (like those anti-rejection drugs), tracking symptoms, and figuring out what works for me — whether it’s using oxygen therapy, sticking to a nutrition plan, or slowly building up my activity level. Honestly, the CareClinic app has been a game-changer for keeping everything in one place — from symptom tracking to setting reminders for follow-ups and meds.
But I know there’s no one-size-fits-all with IPF, so I wanted to ask — if you’ve gone through a lung transplant or are managing IPF, what’s helped you the most?