got referred to pain clinic a couple weeks ago. their waitlist is four months out. my baseline is sitting at 6-7, sometimes spikes to 8 or 9 when i overdo it. still figuring out pacing while working part-time. here’s the thing: i went to 3 days a week in april because full-time flares me out for days. tbh but the income cut is brutal. i lost employer insurance and COBRA is almost $800/month. so i’m basically paying to be sick while waiting for the specialist who might actually help. does anyone else find themselves stuck in this gap? you need treatment now but you’re also broke and your pain is getting worse. are you just supposed to white-knuckle through flares for four months?
that four-month gap isn’t a waitlist, it’s a coordination failure. 📊
1 Like