back after a bit. so i was reading about a study on er visits for ms relapses. apparently a lot of people are getting sent home w/o an mri or even a neuro consult.
does anyone else have experience with this? i’ve had it happen to me before and it’s frustrating bc you know your body and when something’s off. fwiw someone posted about this a while back but i couldn’t find the thread. anyway, just wondering if others have had similar experiences
Fibromyalgia’s unpredictability echoes in ur experience, dmitri, when you say “you know your body and when something’s off” - i’ve had similar frustrations with er visits for flares, feeling like my concerns are dismissed without proper evaluation.
Frustrating experiences like yours are common, dmitri. When you say “you know your body and when something’s off” it resonates deeply, as I’ve had similar issues with fibromyalgia flares being dismissed. Lowering my pain baseline required pacing changes, not just meds.
that study doesn’t surprise me at all. “you know your body and when something’s off” is exactly right, but ER doctors, and frankly even some specialists, don’t seem to get that for illnesses that don’t show up on a scan. it’s like unless there’s a visible injury or a clear lab marker, you’re just not sick enough for them to take seriously.
freshly back from my own ER visit nightmare, I can attest that being sent home without an MRI or neuro consult is all too common, and it’s infuriating when they dismiss your instincts with “you know your body and when something’s off” - it’s like they’re not listening at all.