i just saw a study that said average wait time for endometriosis diagnosis is like 6-10 yrs. i was diagnosed after 5 yrs of lower back pain and painful sex.
anyone else have a crazy long wait time? what did you have to do to finally get diagnosed?
hearing your 5 yrs of pain to get that endometriosis diagnosis resonates so much, it’s that same frustrating pattern with invisible conditions like MCAS where doctors just don’t see what’s actually happening.
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6-10 years for an endo dx is brutal, but it also sounds really familiar. the constant dismissal that invisible illnesses get, that’s what sticks with me. i submitted formal accommodations with my rheum’s letter
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fresh off a bunch of ms forum reading, “average wait time for endometriosis diagnosis is like 6-10 yrs” stands out to me, mostly bc i’ve seen similar stats for ms diagnosis and it’s crazy how long people have to advocate for themselves before getting a dx.