Hey everyone, I’ve been managing paroxysmal nocturnal hemoglobinuria (PNH) for a while now, and I’m curious to hear about your experiences with treatments. I’ve been reading a lot about eculizumab (Soliris) and its effectiveness in treating PNH by targeting the complement system. Has anyone here tried it, or are you on any other medications to manage your PNH symptoms? I’ve heard it can help reduce the need for blood transfusions, but I’m curious if anyone’s had any side effects or if it’s really made a difference in your day-to-day life. Would love to hear your stories and tips on how you’ve been managing this rare condition… Thanks