so my ESR and CRP have been stable for months, which my rheumatologist obviously sees as a win. but i’m still exhausted most days - did a shower yesterday and had to sit down after. got lab work back (ANA normal) and walking a mile completely wiped me out. when i try to explain “my labs are better but i still can’t function at work” it doesn’t land the same way as “my C3 is tanked.” my doc seems to think if inflammation markers are down, fatigue should be too.
but that’s not how it’s working for me. maybe it’s the methotrexate. maybe it’s leftover from the bad flare last year. maybe that’s just how lupus is after you’ve had a bad flare.
i honestly don’t know. the fatigue doesn’t care what my bloodwork says. how do you get doctors to take the fatigue seriously when the numbers don’t back it up?