i keep having these weird moments at work where i realize how much the system assumes i’m fine, even when my joints are really angry and the fatigue hits out of nowhere. i was trying to tackle some complex ledger stuff yesterday and it just kept stopping.
someone mentioned ‘managing your time better.’ like that’s a thing you can just logic yourself into doing when anti-dsdna makes everything feel fuzzy? i just spend half my brain power remembering which meeting is actually happening.
how do y’all talk to people who physically cannot grasp how exhausting it is just existing w/ a flare?