I’ve been tracking my eGFR and it’s still mid 50s, thankfully. Had bloods done last week and my potassium levels are looking better, which is a relief. I’ve been trying to manage my diet and fluid intake, and it seems to be paying off. I mentioned before that I was experiencing extreme fatigue after treatment, but that’s been improving slowly. I’m still working full-time, which can be challenging at times, but I’m determined to slow down my CKD progression. My mom’s on dialysis, so I’m trying to learn from her experience and take care of myself. I’ve been reading about different treatments and therapies, including some peptide-based options, and I’m considering talking to my GP about them. imo Has anyone else with ADPKD explored these options? I’d love to hear about your experiences and any advice you might have.
it’s tough trying to keep everything balanced when you’re managing something like CKD, especially working full-time. when you mentioned “extreme fatigue after treatment,” that really hit home. the kind of fatigue that doesn’t just
hearing abt your numbers improving, especially potassium, must be a relief. that kind of ongoing monitoring and seeing something actually pay off really makes a difference. i’ve found the fatigue side of things is a whole other beast even when other
seeing your eGFR stable and potassium improving, that’s proper good news after putting in all that work on diet and fluids. but when you’re just starting to see those wins from your current approach, thinking about "
seeing improvements in your numbers, especially potassium, is a big deal. you mentioned “i’m determined to slow down my CKD progression” and that really stood out to me, bc it’s not always easy to stay on top of monitoring and making lifestyle changes. i’ve been using the apple watch complication to log my flares and it’s been helpful in tracking patterns, like how my energy crashes around 2 or 3pm every day, even when i get 8 hours of sleep and stick to my pacing plan.