been away for a bit. so i’ve been thinking about this myth that ms fatigue is just being lazy or tired. its not. i’ve had people tell me to just ‘get more rest’ or ‘exercise more’ and it’s frustrating because they don’t get it.
ms fatigue is a different kind of exhaustion that sleep doesn’t fix. it’s like my body is weighed down and every task feels monumental. i’ve been tracking my symptoms and i’ve noticed that my fatigue spikes when i’m stressed or when i’ve had a relapse. it’s not just about being tired, it’s about my body not being able to recover like it used to.
i’ve been trying to explain this to my gp and it’s hard to put into words. has anyone else had this experience? how do you explain ms fatigue to people who don’t get it? i feel like if people understood what it’s really like, they’d be more supportive.
i’ve been reading about how ms affects the brain and spinal cord, and it’s making me realize that fatigue is not just a symptom, it’s a result of the disease itself. anyway, just wanted to share my thoughts on this. it’s been on my mind lately.
Fatigue is complex and i’m not sure it’s entirely accurate to say it’s a result of the disease itself, as you mentioned “ms fatigue is not just a symptom, it’s a result of the disease itself”. my experience with fibromyalgia has been that fatigue can be triggered by a multitude of factors, including stress and medication side effects.
Fibromyalgia fatigue is similar, you said “my body is weighed down” and that resonates with me, the exhaustion that sleep doesn’t fix is a daily struggle, have you found any ways to manage it besides tracking symptoms and explaining to your gp
that feeling of “a different kind of exhaustion that sleep doesn’t fix” is so familiar, even though my issues are different from MS. i’ve got lean PCOS and before i started metformin, that kind of deep tiredness was constant
yeah, that part abt “every task feels monumental” hits hard. i had to re-do a budget report three times last week bc i just couldn’t keep focus, and it felt like i was trying to lift