back again… been away for a few weeks. i had this weird interaction with my partner last night and it really got me thinking abt how hard it’s to explain all of this stuff.
we were just watching tv, and when i needed to move kinda slow because of the spasticity in my calf, he actually rolled his eyes at me. i know he doesn’t mean it that way but it was rough. like, he got annoyed instead of understanding why a simple movement feels exhausting after a flare or something.
it’s not just ‘tired.’ it’s this deep bone-weary fatigue that makes getting up off the couch feel like climbing stairs. i guess i always wonder: what’s been the most infuriatingly misunderstanding thing your partner has done regarding an invisible symptom? how do you actually teach them when they are literally looking at someone who looks ‘okay’?