edss holding steady on Ocrevus, which is what i wanted. but the cognitive stuff is different - harder to catch. been noticing word gaps, especially at work. i’ll be mid-sentence and the word just isn’t there.
maybe 3-4 times a month, lasts 20 seconds, then clears. no MRI change, so my neuro says “sounds stable.” maybe it is. but how do you measure something that’s not consistent enough to report? that’s my real question: how do you track something happening randomly between appointments?
by the time you see your neuro you’re usually fine. anyone else keeping a log or timing these? or does your neuro just check EDSS and call it a day?