figuring out those exact windows for ‘extreme temperature changes’ is the real grind, especially when it’s not an instant trigger.
tracking that heat sensitivity is one thing, but figuring out the trigger for a full relapse, “correlation between my relapses and extreme temperature changes,” that’s where the timing can get super complicated. is it the actual
Six months on ocrevus and still dealing with fatigue as the biggest issue is pretty relatable, when you say “i feel like i’m gonna pass out if i’m outside for more than 20 mins in the summer” that sounds like uhthoff’s syndrome to me, have you noticed any other symptoms that get worse with heat or is it mostly the passing out feeling.
what kind of fatigue are you seeing most, like is it more pem or just general exhaustion that won’t lift?
that heat sensitivity is a common and well-documented symptom in MS.
that feeling of “gonna pass out if i’m outside for more than 20 mins” sounds rough. when you say you’ve found a “correlation between my relapses and extreme temperature changes,” have you noticed if those
it’s really tough when you’re trying to connect the dots between your symptoms and what might be setting them off, especially with the fatigue still being such a burden after six months on ocrevus. when you mention "correlation between