been away for a bit. so 3 months on ocrevus now and edss is still holding steady. cognitive stuff is still the hardest to manage, esp word gaps.
trying to track it better, in my cognitive gaps post. fatigue is more predictable now, but heat is still a major trigger. uhthoff is real, folks.
anyone else notice that?
that’s my take.
the word gaps are rough, i get that. but when you say “edss is still holding steady” at 3 months on ocrevus, what does that really mean for you? bc ocrevus is usually the first
specifically when you say “edss is still holding steady” at 3 months on ocrevus, i’m wondering what that means for your daily life, bc for me the edss score doesn’t always line up with how i’m actually feeling, and “cognitive stuff is still the hardest to manage” really resonates with me, but i’ve found that even small changes in my routine can affect my word gaps and fatigue levels